National LACS registry: This national registry is being developed with the aim of bringing together information on LACS patients from all over the UK. This will allow clinicians and researchers to better characterise the condition and will lead to improved investigation, diagnosis and treatment of the condition.
Research projects: A number of directly-related research projects are in development with the aims of improving diagnoses and treatment of LACS. Research topics include:
- The impact of physiotherapy in treatment of LACS
- The use of MRI in diagnoses of relapsing polychondritis
- Portable ventilatory support in treatment of LACS
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